Comments for Emilie's Blog http://mcdj.wordpress.com a blog about Angelman Syndrome, family, inclusion, disability, education Wed, 04 Nov 2009 14:22:31 +0000 http://wordpress.com/ hourly 1 Comment on Medication Update by emma http://mcdj.wordpress.com/2009/11/02/medication-update/#comment-701 emma Wed, 04 Nov 2009 14:22:31 +0000 http://mcdj.wordpress.com/?p=869#comment-701 Interesting about the flax seed oil and B supplements, who suggested them? Our neurologist has said something about omega 3/6 supplements for behaviour after I had told her we weren't happy with risperdol - I think flax seed oil has omega "something"? Risperdol is the only drug prescribed to children for behaviour problems here in Greece, although I've heard of concerta from other parents. Hope things go well. Interesting about the flax seed oil and B supplements, who suggested them? Our neurologist has said something about omega 3/6 supplements for behaviour after I had told her we weren’t happy with risperdol – I think flax seed oil has omega “something”?

Risperdol is the only drug prescribed to children for behaviour problems here in Greece, although I’ve heard of concerta from other parents. Hope things go well.

]]> Comment on About by Paula Evans http://mcdj.wordpress.com/about/#comment-700 Paula Evans Wed, 04 Nov 2009 02:55:22 +0000 #comment-700 Hi Emilie, My name is Paula, my daughter Ainsley is 5 del+. We've met at the St. Louis conference and I've emailed with you in the past. I would like to speak with you about something if you have the time. Could I contact you or vice-versa? Hi Emilie,

My name is Paula, my daughter Ainsley is 5 del+. We’ve met at the St. Louis conference and I’ve emailed with you in the past. I would like to speak with you about something if you have the time. Could I contact you or vice-versa?

]]> Comment on who’s really autistic? by Brandie http://mcdj.wordpress.com/2009/10/24/whos-really-autistic/#comment-699 Brandie Sun, 01 Nov 2009 03:26:07 +0000 http://mcdj.wordpress.com/?p=861#comment-699 After working in a classroom for children with disabilities, I can more assuredly say that autism is wayyy overdiagnosed. It's sad. :-( After working in a classroom for children with disabilities, I can more assuredly say that autism is wayyy overdiagnosed. It’s sad. :-(

]]> Comment on To medicate or not to medicate, that is the question! by Heather http://mcdj.wordpress.com/2009/10/09/to-medicate-or-not-to-medicate-that-is-the-question/#comment-698 Heather Sat, 31 Oct 2009 20:04:40 +0000 http://mcdj.wordpress.com/?p=851#comment-698 Hey Em It's a hard decision. I tried to take Chance off meds because the side-effects were so terrible, but without them, his behavior is sooooo bad. I've contacted Darren Humphries and he's got a contact with ASSERT in the UK that produced a 28-page booklet and DVD on dealing with difficult behaviors in Angelman. I'm waiting to see if I can get my hands on a copy. Have you seen it? Hey Em

It’s a hard decision. I tried to take Chance off meds because the side-effects were so terrible, but without them, his behavior is sooooo bad. I’ve contacted Darren Humphries and he’s got a contact with ASSERT in the UK that produced a 28-page booklet and DVD on dealing with difficult behaviors in Angelman. I’m waiting to see if I can get my hands on a copy. Have you seen it?

]]> Comment on To medicate or not to medicate, that is the question! by Jennifer http://mcdj.wordpress.com/2009/10/09/to-medicate-or-not-to-medicate-that-is-the-question/#comment-696 Jennifer Sun, 11 Oct 2009 02:42:18 +0000 http://mcdj.wordpress.com/?p=851#comment-696 I feel your pain (((((HUGS))))). It's a tough decision. We are going through this decision with our boys right now. They have Fetal Alcohol Spectrum Disorder (FASD) and drug exposure, and it's at the point where, we can handle it, but would it be better for them to have better control of their actions and have better brain clarity??? They get in trouble constantly and I also, like you, want to be the nice Mom, not the B*@*h that's yelling at them all the time, because that's how I feel quite often. It also affects the other kids because it affects my mood, and they have to listen to it too. Would they like to remember what is said to them, yes. Would they like to think before they act, yes. Would they like to get a sentence out in less than a minute, yes. And like someone else told me, if they had diabetes, would I be against medicating them? Because it's almost as serious of an issue. They said that I'd notice within days if it works and if it doesn't we can change it or whatever. I'm sure someday we'll be at the same point with Peyton that you are with Maddie. Peyton likes to get into everything, pull hair, scream, etc. and we all think it's so cute. Someday, when she's Maddie's age, it won't be so cute anymore. Anyways, you have my support in whatever decision you make. It's a tough one, like many decisions we special needs parents have to make. These little people are counting on us and we don't want to screw up. And these days you don't know who you can trust because no two Dr.'s seem to agree on anything anymore, so that helps about as much as a kick in the head. More (((((HUGS))))), Jen I feel your pain (((((HUGS))))). It’s a tough decision. We are going through this decision with our boys right now. They have Fetal Alcohol Spectrum Disorder (FASD) and drug exposure, and it’s at the point where, we can handle it, but would it be better for them to have better control of their actions and have better brain clarity??? They get in trouble constantly and I also, like you, want to be the nice Mom, not the B*@*h that’s yelling at them all the time, because that’s how I feel quite often. It also affects the other kids because it affects my mood, and they have to listen to it too. Would they like to remember what is said to them, yes. Would they like to think before they act, yes. Would they like to get a sentence out in less than a minute, yes. And like someone else told me, if they had diabetes, would I be against medicating them? Because it’s almost as serious of an issue. They said that I’d notice within days if it works and if it doesn’t we can change it or whatever.
I’m sure someday we’ll be at the same point with Peyton that you are with Maddie. Peyton likes to get into everything, pull hair, scream, etc. and we all think it’s so cute. Someday, when she’s Maddie’s age, it won’t be so cute anymore.
Anyways, you have my support in whatever decision you make. It’s a tough one, like many decisions we special needs parents have to make. These little people are counting on us and we don’t want to screw up. And these days you don’t know who you can trust because no two Dr.’s seem to agree on anything anymore, so that helps about as much as a kick in the head.
More (((((HUGS))))),
Jen

]]> Comment on article: fully inclusive classroom by TrainyBrainy » Blog Archive » Posts about Special Education as of October 9, 2009 http://mcdj.wordpress.com/2009/10/09/article-fully-inclusive-classroom/#comment-695 TrainyBrainy » Blog Archive » Posts about Special Education as of October 9, 2009 Fri, 09 Oct 2009 18:42:54 +0000 http://mcdj.wordpress.com/?p=848#comment-695 [...] disability. With a moderate disability, the child will require some help with ambulation. article: fully inclusive classroom - mcdj.wordpress.com 10/09/2009 Jump to [...] [...] disability. With a moderate disability, the child will require some help with ambulation. article: fully inclusive classroom – mcdj.wordpress.com 10/09/2009 Jump to [...]

]]> Comment on To medicate or not to medicate, that is the question! by emma http://mcdj.wordpress.com/2009/10/09/to-medicate-or-not-to-medicate-that-is-the-question/#comment-694 emma Fri, 09 Oct 2009 15:27:42 +0000 http://mcdj.wordpress.com/?p=851#comment-694 Difficult descision, but yes at the end of the day if it is affecting Maddie's life by restricting where she can go etc (as well as the lives of those around her) and no other solution has been found then I think medications have to be considered. Dimitri has taken risperdol, but we took him off it after a few weeks as he seemed "rather than calmer. We came close to considering it again this summer, but for now things are running smoothly (although I'm not looking forward to adolescence) Difficult descision, but yes at the end of the day if it is affecting Maddie’s life by restricting where she can go etc (as well as the lives of those around her) and no other solution has been found then I think medications have to be considered.

Dimitri has taken risperdol, but we took him off it after a few weeks as he seemed “rather than calmer. We came close to considering it again this summer, but for now things are running smoothly (although I’m not looking forward to adolescence)

]]> Comment on To medicate or not to medicate, that is the question! by Teresa http://mcdj.wordpress.com/2009/10/09/to-medicate-or-not-to-medicate-that-is-the-question/#comment-693 Teresa Fri, 09 Oct 2009 15:17:06 +0000 http://mcdj.wordpress.com/?p=851#comment-693 Good luck Emile. I hope you find a solution that works. Will keep Maddie in our thoughts. Good luck Emile. I hope you find a solution that works. Will keep Maddie in our thoughts.

]]> Comment on To medicate or not to medicate, that is the question! by randomcontemplations http://mcdj.wordpress.com/2009/10/09/to-medicate-or-not-to-medicate-that-is-the-question/#comment-692 randomcontemplations Fri, 09 Oct 2009 14:52:00 +0000 http://mcdj.wordpress.com/?p=851#comment-692 Praying for you and Maddie, and your decision. It is always a tough choice, and one that makes you wish someone else could make it for you. I know my sis feels that way about sleeping meds, for my nephew, it's a love hate relationship. Maddie is your oldest, and first girl to go through this, so wanted to let you know that Caylee, my typical child, flipped out about everything at 12 years old! She was an emotional basket case, Jeckel and Hyde! It got so much better after the cycles began. Praying for you and Maddie, and your decision. It is always a tough choice, and one that makes you wish someone else could make it for you. I know my sis feels that way about sleeping meds, for my nephew, it’s a love hate relationship. Maddie is your oldest, and first girl to go through this, so wanted to let you know that Caylee, my typical child, flipped out about everything at 12 years old! She was an emotional basket case, Jeckel and Hyde! It got so much better after the cycles began.

]]> Comment on safely decorating a pre-teen girls room by Lesley http://mcdj.wordpress.com/2009/10/03/safely-decorating-a-pre-teen-girls-room/#comment-690 Lesley Sun, 04 Oct 2009 16:53:39 +0000 http://mcdj.wordpress.com/?p=818#comment-690 LOVELY! I want badly to redo Jordan's room, but since her mom did it for her, it's hard to repaint it. LOVELY! I want badly to redo Jordan’s room, but since her mom did it for her, it’s hard to repaint it.

]]>