on this website?
I’ve decided to give up on “anonymity” for this blog. Its now public and listed with google and other search engines. The point of my blog is to help other families with Angelman Syndrome.
Its funny because I had this blog up on a different site and when I found out it was compromised and being passed around, [...]
April 10, 2008
How much to share . . . . . . .
April 10, 2008
How Much To Share…
about Maddie’s specifics.
I no longer give Angelman Syndrome information out to people who work with Maddie. It is all such a downer, such a huge laundry list of her deficits, its truly overwhelming to read, . . . I don’t see how it benefits her at all.
When people look at her, I want them to see her, [...]
