Entries from April 2008

April 28, 2008

To be wanted!

What is it like to be wanted?  Isn’t that something that we all crave?  Wow, I’ve never really had this experience with Maddie before. 
In general, this time of year really sucks for me.  We have Maddie’s annual IEP and MAPS meeting.  Its a really long day, a lot of prep work, a lot of anxiety and [...]

April 27, 2008

Cute photo!

Over Easter break, the kids and I went to Lake Erie Metropark’s Marshands Museum and Nature Center.  I took this photo of all my babies reading.

 
Are they all reading these nature and travel magazines that were at the park?  Obviously no! 
I strongly discourage the phrase “he/she can’t” in our household.  Andrew is at the age [...]

April 27, 2008

Angelman Syndrome and Toliet Training

 
We started potty training my daughter right before she turned two (before we knew there was something actually amiss with her).  She did not walk or talk at the time. 
She was in cloth diapers (sensitive skin), and she knew when she wet it was NOT a comfortable thing.  It was pretty obvious she would pee [...]

April 24, 2008

Destiny

“We must be willing to let go of the life we have planned so as to have the life that is waiting for us.”
E. M. Forster
 
This quote is up on Emma and Teresa’s blog.  I love reading it each time I go to their site.
http://emmasjoyfuljourney.blogspot.com/
 
To me, it says: Let go of what you think [...]

April 24, 2008

ASF Million Dollar Challenge

This is the tenth year of the Angelman Syndrome Foundation National Walk-a-Thon. 
 This can be the year that the ASF passes the one million dollar mark for annual fundraising.  To put it in context to highlight what a big deal this is for the ASF, the first few years the ASF funded almost no research.  Because [...]

April 23, 2008

Diversity

I was at an event in my community last night and I heard a young lady make some comments about diversity.  In my small town, the word “diversity” mainly means just blacks and whites getting along.  And although we do have a considerable Hispanic population, rarely is that community mentioned.  Rarely if ever is thought put towards what else diversity [...]

April 21, 2008

IEP Goals Bank

This is one that I have bookmarked
 
 
IEP Goals and Objectives Bank (PDF)
http://www.bridges4kids.org/IEP/iep.goal.bank.pdf
This amazing 177-page document will assist both parents and professionals in forming goals for kids of all ages in the special ed system. The Goal Bank has been designed to allow users to locate specific goals as used in the eSIS SPED Full software. Click [...]

April 18, 2008

Angel Ashley

Not sure what to say.  This post is in honor of Ashley Williams.  Little Ashley went into cardiac and respiratory arrest earlier this week after an incident while eating.  Ashley was removed from life support on April 17.  Her mom Alicia is such a loving and giving person.  Very sad circumstances, I can’t imagine being in that [...]

April 14, 2008

Inclusion News Story - Philadelphia

 
 
http://abclocal.go.com/wpvi/story?section=news/special_reports&id=6073339
 
NORRISTOWN, Pa. - April 10, 2008 (WPVI) — For years, having a child with disabilities meant having them separated into different educational paths from other children. Now a handful of Montgomery County women are empowering parents with new options.
 
Most educators agree that children learn better by example, and that’s true for ALL children, even those [...]

April 14, 2008

Learning (by Candee)

Stolen from another mom (with permission)
Human beings do not always and probably rarely if ever learn in a linear, step by step fashion (so much for no child left behind).
I think we humans learn in what I would call the BACKYARD FIREWORKS MODEL- randomly exploding in surprising and brilliant colors and patterns, but not always in sequence [...]